Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Researcher Spotlight: Eduardo Chini, M.D., Ph.D.
Published on July 27, 2021 Eduardo Chini, M.D., Ph.D., Mayo Clinic How did you first get involved in PKD research? Eduardo: I’ve trained with Dr. Thomas Dousa one of the found fathers of...
PKD-Friendly Summer Grilling: Simple Kebob Marinade
Published on July 20, 2021 | Summer is here and you know what that means—cookouts. Whether we're in the backyard, camping, or spending some time at the lake, we can all use a good grill recipe....
2021 Walk for PKD: Your Questions Answered
Published July 13, 2021 | For over 20 years, the Walk for PKD has thrived as the PKDF’s signature fundraising and public awareness event. Last year, the COVID-19 pandemic meant changing the Walk...
How I’m Raising PKD Awareness
Published July 08, 2021 | When you receive a diagnosis, it's easy to focus on the negatives. Instead of being pessimistic, Rob Herman is focused on creating change for PKD. Today, he details his...
When a Clinical Trial Fails
Published on June 29, 2021 | On June 1, the STAGED-PKD study was halted due to an inability to meet futility criteria. The study was looking at an investigational drug called venglustat to treat...
Researcher Spotlight: Xiangqin Cui, Ph.D.
Published on June 22, 2021 Xiangqin Cui, Ph.D., Emory University How did you first get involved in PKD research? Xiangqin: When I was a postdoc in Dr. Gary Churchill’s lab at the Jackson...
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Published on July 27, 2021 Eduardo Chini, M.D., Ph.D., Mayo Clinic How did you first get involved in PKDRead More
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Published on July 20, 2021 | Summer is here and you know what that means—cookouts. Whether we’re in the backyard,Read More
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Published July 13, 2021 | For over 20 years, the Walk for PKD has thrived as the PKDF’s signature fundraisingRead More
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Published July 08, 2021 | When you receive a diagnosis, it’s easy to focus on the negatives. Instead of beingRead More
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Published on June 29, 2021 | On June 1, the STAGED-PKD study was halted due to an inability to meetRead More
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Published on June 22, 2021 Xiangqin Cui, Ph.D., Emory University How did you first get involved in PKD research?Read More