Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
The Exceptions
When I was first diagnosed with PKD at ten years old, my nephrologist told my mom and me, “You will probably follow your same family history and not be affected until your late 40s to early 50s,”...
The Gift of Life: Interview With My Donor
I love that my living kidney donor, Sally Robertson, has been a part of my life since I was in 8th grade. I will always be in awe and forever grateful for Sally’s selflessness and gift of life....
How I Honor My Donor
Actions speak louder than words. A mere “thank you” to my living kidney donor, Sally Robertson, seems inadequate as I’ve been afforded the past 13 years and 8 months of living because of her...
Nothing is a Coincidence
Today wraps up 31 Days of PKD Challenges. It has been fun to see the heightened PKD awareness being spread on social media the past couple of weeks. We should be proud of the difference we’ve...
Everyone Has a Story
We all have a story. Whether your PKD is a spontaneous mutation, hereditary, ADPKD, ARPKD or you are a caregiver to someone who has PKD, you have a story to tell. Some of us are more private than...
Education = Empowerment
I was in my early 20s when I first typed “PKD” in Google’s search engine. That was 12 years ago this month. I was so excited to discover the PKD Foundation. I immediately contacted the Chapter...
-
Life has taught me how adaptable we are to change and how fun change can be. Today marks six yearsRead More -
I’ve learned a lot from living with PKD since the age of 10. PKD and the health issues I’ve enduredRead More
-
I think people would be surprised if they knew how many PKD patients live close to them. I spent aRead More
-
When I was first diagnosed with PKD at ten years old, my nephrologist told my mom and me, “You willRead More
-
I love that my living kidney donor, Sally Robertson, has been a part of my life since I was in 8thRead More
-
Actions speak louder than words. A mere “thank you” to my living kidney donor, Sally Robertson, seems inadequate as I’veRead More
