Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Positivity Prevails
There is one question I have been asked more than any other. “How do you stay so positive?” When thinking of all that I have to endure, there are times I wonder the same thing. We each have...
13 Life Lessons
As a child, the days seem so long. That feeling changes quickly as we grow older and the word “bored” vanishes from our vocabulary. I have entered the age range where time feels fleeting and the...
No Occasion Needed
“What’s the special occasion?” I’m sure you have heard this question when someone sees you dressed up, if you mention an upcoming trip, bake a cake, or purchase something out of the ordinary. I...
Celebrating Progress Toward Treatments
My evening at the Tolvaptan Extravaganza Gala If someone would have told me when I was 19 and on death’s doorstep because of PKD, that in 13 years I would share my triumph over adversity by...
More Than Just Patients
As a patient, one must possess a multitude of skills. We become our own administrative assistant by scheduling our medical appointments and the phone calls, paperwork and documentation involved...
Our Endurance Run
Being an athlete involves training, some natural-born talent, strength, stamina and an immense amount of determination, dedication and drive. Noah and I watched athleticism at its finest on the...
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On PKD Awareness Day, Sept. 4, 2015, my family and I used window markers and excitedly decorated our car inRead More -
I fondly remember being in my early 20s and sitting on my living room floor calling one person after anotherRead More
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For many of us, we have to deal with PKD personally and also handle the emotions our loved ones endureRead More
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There is one question I have been asked more than any other. “How do you stay so positive?” When thinking ofRead More
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As a child, the days seem so long. That feeling changes quickly as we grow older and the word “bored”Read More
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“What’s the special occasion?” I’m sure you have heard this question when someone sees you dressed up, if you mentionRead More
