Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
The Waiting Game
When your nephrologist calls you two hours after you get your monthly blood work drawn, you know something is wrong. This happened to me last week. When I answered the phone and heard my...
Cancer, Post-Transplant
It has been nearly 13 years since I was given the precious gift of life. When I received my kidney transplant I was not only given a second chance, but the responsibility to care for the special...
A Family Disease
When I think back to my PKD cyst bleed episodes in middle school and high school, I realize I did not talk to many people about what was happening to me. My parents, doctors and school nurse were...
Circle of Support
Sometimes what may seem like a simple gesture or action can prove to mean a whole lot to someone else. I had a ‘fall in love all over again moment’ with Noah last weekend. We attended a PKD...
Give Yourself a Break
In preschool, we are given snacks and nap-time to refuel. In grade school, we have recess to burn off energy and help us focus. In high school, we are given breaks between class periods to...
Learning As I Go
Nobody likes a setback. I’ve learned that downtime gives us more time to think, which sometimes can be to our benefit and other times not. I find it interesting the thoughts that sporadically...
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My evening at the Tolvaptan Extravaganza Gala If someone would have told me when I was 19 and on death’sRead More -
As a patient, one must possess a multitude of skills. We become our own administrative assistant by scheduling our medicalRead More
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Being an athlete involves training, some natural-born talent, strength, stamina and an immense amount of determination, dedication and drive. NoahRead More
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When your nephrologist calls you two hours after you get your monthly blood work drawn, you know something is wrong. ThisRead More
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It has been nearly 13 years since I was given the precious gift of life. When I received my kidney transplantRead More
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When I think back to my PKD cyst bleed episodes in middle school and high school, I realize I didRead More
