Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
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Awareness
Education
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Explore Transplant
We just finished Kidney Month, and today marks the beginning of Donate Life Month. For people with PKD, transplantation is never far from our thoughts, so I’m focusing today’s blog on this topic....
A Fond Farewell
When living with a genetic disease, such as PKD, we have seen and felt the effects of it throughout multiple generations. Quite often I hear others share stories of numerous family members they...
PKD Will Not Beat Me
PKD Will Not Beat Me is my motto, my mission and my passion. It’s how I stand up to our disease and show it who’s in control. It is how I lead my life and I try to encourage others to incorporate...
Challenge Accepted
When diagnosed with polycystic kidney disease (PKD), facing and overcoming challenges are part of the disease. This month, the PKD Foundation is hosting a month-long challenge. One that if...
Hello Hope
I was standing with my back toward the wall at Starbucks in the Sacramento International Airport, waiting for my tall, iced, green tea unsweetened with two Splenda Sweeteners. I was wearing a...
Dating The Sick Girl
I was in my early 20s when I first met my husband, Noah. We saw each other two nights in a row at different locations. The friends we were both with knew each other. The second night we saw each...
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People fascinate me. We all have unique characteristics and bodies that make us look completely different from one another. Yet,Read More -
As time passed, the pain intensified in my lower back. I winced with pain at every imperfection in the road’sRead More
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I didn’t have time to prepare and worry about my kidney transplant. Things happened quickly and my focus was survivingRead More
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We just finished Kidney Month, and today marks the beginning of Donate Life Month. For people with PKD, transplantation isRead More
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When living with a genetic disease, such as PKD, we have seen and felt the effects of it throughout multipleRead More
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PKD Will Not Beat Me is my motto, my mission and my passion. It’s how I stand up to ourRead More
