Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
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Keep Plugging Away
"You woke up. You got out of bed. You got dressed. These may seem like small things. But when you're living with a chronic illness, these small things may take enormous effort and determination....
The Tides of Life
As the tide washed in, the Dutch Tulip Man faced the ocean: “Conjoiner rejoinder poisoner concealer revelator. Look at it, rising up and rising down, taking everything with it.” “What’s that?” I...
Happy 12th Birthday Precious ‘Bean’
Some people are scared of the unknown and don’t give it a chance to see how beautiful it can be. My grandmother and aunt, who passed away due to PKD, did not want a kidney transplant. My mom and...
Helpless vs. Burden
I strongly connected with the story of a butterfly cocoon that was shared in Robin Roberts’ memoir, ‘Everybody’s Got Something.’ “Someone sees the movement of the butterfly pressing against the...
You’re Worth It
Our neighbor is an avid cyclist and has completed a 100-mile run. I asked him if he has ever woken up on the morning of an endurance event feeling tired, as our energy level can vary from day to...
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“Are you an organ donor?” I recently asked this, repetitively, over the course of two hours. It was an enlighteningRead More -
Let’s rewind to December 24, 1958. My mother-in-law, Pam Keefer, was four years old. Her parents and relatives celebrated ChristmasRead More
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“In the 15 years I have been a therapeutic massage therapist, you are my first client who has not complainedRead More
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“You woke up. You got out of bed. You got dressed. These may seem like small things. But when you’reRead More
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As the tide washed in, the Dutch Tulip Man faced the ocean: “Conjoiner rejoinder poisoner concealer revelator. Look at it,Read More
