Voices Archive - Page 11 of 18 - Polycystic kidney disease | PKD treatment research

Alex Coglianese

Why I Walk: Alex Coglianese The PKD Foundation has been a landmark in Alex Coglianese’s life for as long as she can remember. Born the same year as the Foundation’s establishment, she recalls her beloved father, Fred, a PKD patient...

The Phelps Family

The Phelps Family During National Kidney Month in March, Ashley Phelps and her husband Michael sat down for an open discussion about her ADPKD diagnosis, how it affects their family, and what the future holds for their two sons: Michael:...

Beth Leven

Volunteer Appreciation: Beth Leven In honor of Volunteer Appreciation Week, we put together a special Q&A between an experienced Coordinator and a new Coordinator. Beth Leven, Austin Walk Coordinator, has been involved in the PKD Foundation’s volunteer leadership for the...

Peggy Krusell

Why I Walk: Meeting milestones to fund research This year in the National Capital Chapter, one team is celebrating some major milestones in their contributions to the Walk for PKD. We recently sat down with team captain Peggy Krusell to...

Paul Chapman

Hiking to end PKD: Paul Chapman When someone you love has been affected by PKD, one of the most powerful ways you can help fight for them is by raising funds toward research. Whether you donate by yourself, host an...

Nicole Harr

My best friend is giving me the gift of life It’s official: I have a living donor. There have been very few times in my life that so few words have held such tremendous meaning and have brought such profound...

Tom MacAulay

Pedaling to Cure PKD Last month, friends Thomas MacAulay, Bill King, Mike Bizal, Ed Williams, Art Berger, and Chuck Mattioni set out on an 18-day biking Tour down the Pacific Coast Highway from Seattle to San Diego to raise awareness...

Nell Gustavson

[caption id="attachment_2353" align="alignright" width="300"] Nell (right) and Liz[/caption] Finding hope and new life through a long-lost family bond I was diagnosed with PKD in 1987 at the age of 27. This was not a big surprise for me, especially since...

Honoring baby Helen’s memory through fundraising

Voices of PKD: Kristen Neary On May 24, 2002, my husband Keith and I welcomed our first daughter, Helen Grace into the world. She was perfect on the outside and let out a cry after being born. This was a...

Remembering baby Lauren in honor of Pregnancy and Infant Loss Remembrance Day

Voices of PKD: Megan Kuck In February 2005, my husband and I had a second ultrasound to help us determine the gender of our second child. During the ultrasound, the tech went quiet and told us that she would be right...

Highfill family keeps their babies’ memories alive at the Walk for PKD

Voices of PKD: Lauren Highfill We have lost two babies to polycystic kidney disease (PKD). Ironically they both passed away on July 21st (one year apart). It makes remembering this sad day a little easier to have it all on one day!...

Spreading kindness in honor of baby Juniper’s memory

Voices of PKD: Mandy Wakely On December 10, 2008 my daughter Juniper Isabelle Wakely was born. Twenty minutes later, she died in my arms from autosomal recessive polycystic kidney disease (ARPKD). Even with all the planning I’d done in preparation for...