Jennifer Tompkins Kirshenbaum amplifies voices of those living with PKD by particpating in an in-district meeting
[caption id="attachment_18714" align="alignright" width="300"] From left to right: Walk Coordinator Angi Ulrich, Volunteer Chapter Coordinator Kim Beger and her husband, Nate Beger, and Volunteer Education Coordinator Jennifer Tompkins Kirshenbaum and her husband, Matt Kirshenbaum.[/caption] During the legislative year, the PKD...
Read MoreSolving two problems at once
[caption id="attachment_1456" align="alignright" width="400"] Through the PKD Foundation's vehicle donation program, the Beger family was able to solve two problems at once: they got rid of the car they didn't need, and were able to provide funds for the Foundation.[/caption]...
Read MoreKriste Lewis fulfills her dreams and lives her best life with PKD
[caption id="attachment_1103" align="alignright" width="284"] Kriste and her family at the New Orleans Walk for PKD.[/caption] It was always on Kriste Lewis's bucket list to try out to be an NFL cheerleader. As she approached her 40th birthday, she decided to...
Read MoreGrammy nominated artist co-produces album to benefit the PKD Foundation
[caption id="attachment_1090" align="alignright" width="350"] Grammy nominated artist Jeff Lorber knows all to well the impact PKD has on families.[/caption] Grammy nominated keyboardist/composer/producer, Jeff Lorber, and guitarist, Chuck Loeb team up to co-produce BOP, a one-of-a-kind traditional bebop album that brings...
Read MoreYoung scientist on mission to find alternative to his own transplant
[caption id="attachment_1089" align="alignright" width="250"] At 17 years old, Demetri Maxim is already a prize-winning scientist, budding inventor and patent holder, Olympic ski team hopeful, avid cyclist and drummer.[/caption] If Demetri Maxim has anything to say about it, he could be...
Read MoreTransplant Games provide a way to honor organ donation
[caption id="attachment_1091" align="alignright" width="420"] JoAnn Villanueva and her sister, Janice Gill, train for their swimming event.[/caption] The Transplant Games of America is a multi-sport festival event for individuals who have undergone life-saving transplant surgeries. Competition events are open to living...
Read MoreBrightening the future for PKD families
[caption id="attachment_1086" align="alignright" width="300"] Brianna was diagnosed with PKD at just 11 years old, making her the youngest in a family full of PKD.[/caption] The spring, for many, signals a new start and a perfect time to set new goals...
Read MoreKissing for a cause
[caption id="attachment_1092" align="alignright" width="240"] For Karli and Cuyler Franzke, an age-old wedding tradition turned into an opportunity to raise funds to support the PKD Foundation.[/caption] Every wedding is a little different - some couples jump over brooms, break glasses or...
Read MoreA family tree of PKD
[caption id="attachment_1084" align="alignright" width="370"] Barbara had no idea that PKD would impact her right when she was starting a family of her own.[/caption] Polycystic kidney disease is a family disease. Like freckles and blue eyes, there's a chance that a...
Read MoreA heart of gold
[caption id="attachment_1097" align="alignright" width="370"] A Heart of Gold stopped beating,Two shining eyes at rest.God broke our hearts to proveHe only takes The Best.God knows you had to leave us,But you did not go alone ~For part of us went with...
Read MoreServing as a voice for young people with PKD
[caption id="attachment_1093" align="alignright" width="320"] Now a college freshman, Kerilyn was diagnosed with PKD at just 13 years old.[/caption] The average teen is more concerned with school, friends and a ride home from volleyball practice than the health of their renal...
Read MoreTaking a stand to change family history
[caption id="attachment_1087" align="alignright" width="300"] When Candi started seeing family members affected by the disease, she took matters into her own hands.[/caption] I didn't want my uncle to be taken away so I just stepped in and helped. Many families carry...
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