Detroit Community Meeting
VirtualJoin us for our upcoming community meeting via video conference!
7:00 pm - 8:30 pm
7:30 pm - 8:30 pm
Decoding ADPKD: Diagnosis, Prognosis, & Genetics
Join us for part one of our four-part webinar series, Confidently Navigating ADPKD: Understanding the New KDIGO Guidelines. In this first session, experts will discuss how ADPKD is diagnosed, what influences disease progression, and the role genetics play in understanding and managing the disease. Plenty of time will be left for your questions, so you can get the answers you need!
You’ll Learn:
How ADPKD is diagnosed and what to monitor
Factors that impact disease severity and prognosis
The genetics of ADPKD (PKD1 vs. PKD2) and understand when genetic testing is recommended and most beneficial
Ethical considerations and family planning related to ADPKD
Guest Speakers:
Terry Watnick, M.D.: Director of the PKD Foundation Center of Excellence at the University of Maryland School of Medicine
Neera K. Dahl, M.D., Ph.D.: Director of the PKD Foundation Center of Excellence at Mayo Clinic Rochester
Dwight Odland: ADPKD patient, Los Angeles Community Coordinator, KDIGO Guidelines contributor
About the Webinar Series
Confidently Navigating ADPKD: Understanding the New KDIGO Guidelines is a four-part webinar series designed to help patients and families better understand the latest care recommendations for ADPKD. Each webinar provides practical, easy-to-understand insights and includes plenty of time for Q&A. Participants will walk away with knowledge they can apply right now to their own ADPKD journey.
Join us for our upcoming community meeting via video conference!
Join us for a discussion with Dr. Paul Grimm, Pediatric Nephrologist at Stanford Medicine Children’s, to learn about the DISOT Study at Stanford.
Understanding Kidney Transplantation
What moments mean the most to you? Birthdays, weddings, quiet evenings with loved ones? For families facing polycystic kidney disease, these moments are too often stolen by pain, hospital visits, and uncertainty.
Join us for our upcoming community meeting via video conference!