St. Louis Community Meeting
VirtualWalk Training and Gathering Volunteers
7:00 pm - 8:30 pm
7:00 pm - 8:00 pm
Beyond the Kidneys – The Whole Body Impact of ADPKD
ADPKD affects more than just the kidneys. In part three of our four-part series, we’ll explore how ADPKD impacts the heart, liver, bones, and metabolic health. There will be plenty of time to get your questions answered by our experts.
You’ll learn about:
Heart and vascular risks in ADPKD, including brain aneurysms.
Polycystic liver disease (PLD) and how to manage symptoms.
The impact of ADPKD on bone health, metabolism, and urinary health.
Preventive care strategies for whole-body health.
Who should attend?
Patients with ADPKD
Family members and caregivers
Those interested in kidney-friendly diets and wellness
Healthcare providers seeking patient-centered guidance
Guest Speakers:
Craig Gordon, M.D., M.S.: Director of the PKD Foundation Center of Excellence at Tufts Medical Center is a nephrologist with expertise in hepatitis C in CKD, thrombotic microangiopathy, polycystic kidney disease, and kidney transplantation. He has held academic and leadership roles at Boston Medical Center and Tufts Medical Center, serving as a renal fellowship program director and course director for renal pathophysiology. Actively involved in clinical research and guideline development, he has contributed to multiple KDIGO guidelines and helped establish a multidisciplinary team for managing thrombotic microangiopathy.
Pranav Garimella, MBBS, MPH, FASN: Director of the PKD Foundation Center of Excellence at University of California San Diego is a board-certified nephrologist with expertise in chronic kidney disease, polycystic kidney disease, kidney stones, and metabolic bone disease. A trained epidemiologist and active researcher, he focuses on kidney function biomarkers, cardiovascular disease risk, and peripheral artery disease in kidney patients while also serving as an associate editor for BMC Nephrology.
Walk Training and Gathering Volunteers
Join us for our upcoming community meeting via video conference!
Research Reflections: Voices of Clinical Trial Participants University of Maryland PKD Clinic
Enjoy an evening of gaming, live music, drinks and hors d'oeuvres for a cause. Proceeds benefit the PKD Foundation, whose mission is to give hope by funding research, advocating for patients and building a community for all impacted by PKD.
Join us for an in person meeting focused on connection, conversation and learning.