Indianapolis Community Meeting
Carmel Clay Library – Main, Meeting Room CJoin us for an in person meeting focused on connection, conversation and learning.
6:00 pm - 7:00 pm
6:30 pm - 8:30 pm
Introducing PKD Centers of Excellence: Cleveland Clinic and Cleveland Clinic Childrens - Learning How Comprehensive Care Supports Every Stage of PKD
Introducing PKD Centers of Excellence: Cleveland Clinic and Cleveland Clinic Childrens – Learning How Comprehensive Care Supports Every Stage of PKD
We’re excited to welcome a new volunteer and spotlight an important resource for people living with PKD in Northeast Ohio. This session introduces the PKD Center of Excellence at the Cleveland Clinic and shares how their care team supports individuals and families affected by Polycystic Kidney Disease at every stage. You’ll learn how a Center of Excellence brings together specialists, resources, and personalized care to help patients navigate PKD—from early diagnosis through more advanced stages—while focusing on quality of life and long-term support.
Meet our new Northeast Ohio PKD Connect Ambassador, Tony Bodak, and hear from the Cleveland Clinic PKD Center of Excellence team, including
Richard Fatica, MD, Clinic Director for the PKD Center of Excellence
Patient Navigator Mary Ann Sako, RN
Katherine Dell, MD, Clinic Director for the Pediatric PKD Center of Excellence
Xiangling Wang, MD, Renal Genetics Program Director at Cleveland Clinic
Join us for an in person meeting focused on connection, conversation and learning.
Meet & Greet with Mount Sinai Partner Clinic: Advances in PKD Care & Diagnosis Updates
Mayo Rochester Video Conference 2026 Updates in PKD A patient-centered education event designed to help people with PKD feel informed and prepared throughout their journey. Hear from experts about diagnosis and early treatment, emerging PKD therapies, strategies for building confidence and capacity to manage your health, and transplant options for PKD patients. Dr Ranine Ghamrawi- Diganosis and Initial Treatment Dr Neera Dahl- Future PKD Treatments Kasey Boehmer, Ph.D, M.P.H. Capacity Coaching Dr Naim Issa, Transplant Options with PKD
Lace up your walking shoes and join us at Sutton Place Park for a fun morning of community, connection, and awareness! This event brings New York City together, uniting hospitals, medical centers, and advocacy organizations from across the city in support of the PKD community.
Join us at the Lakewood National Golf Club on October 26, 2026 for the PKD Applied Underwriters Invitational Golf Event, to raise funds to help end PKD!