New York City Community Meeting
VirtualCommunity Fundraiser Debrief & Planning
6:30 pm - 8:00 pm
7:30 pm - 8:30 pm
Introducing PKD Centers of Excellence: Cleveland Clinic and Cleveland Clinic Childrens - Learning How Comprehensive Care Supports Every Stage of PKD
Introducing PKD Centers of Excellence: Cleveland Clinic and Cleveland Clinic Childrens – Learning How Comprehensive Care Supports Every Stage of PKD
We’re excited to welcome a new volunteer and spotlight an important resource for people living with PKD in Northeast Ohio. This session introduces the PKD Center of Excellence at the Cleveland Clinic and shares how their care team supports individuals and families affected by Polycystic Kidney Disease at every stage. You’ll learn how a Center of Excellence brings together specialists, resources, and personalized care to help patients navigate PKD—from early diagnosis through more advanced stages—while focusing on quality of life and long-term support.
Meet our new Northeast Ohio PKD Connect Ambassador, Tony Bodak, and hear from the Cleveland Clinic PKD Center of Excellence team, including
Richard Fatica, MD, Clinic Director for the PKD Center of Excellence
Patient Navigator Mary Ann Sako, RN
Katherine Dell, MD, Clinic Director for the Pediatric PKD Center of Excellence
Xiangling Wang, MD, Renal Genetics Program Director at Cleveland Clinic
Community Fundraiser Debrief & Planning
Join us for our upcoming community meeting via video conference!
To help patients and families learn more about diet and PKD, Loma Linda University, a PKD Foundation Partner Clinic, is hosting a webinar.
Join us for our upcoming community meeting via video conference!
Join us for our upcoming community meeting via video conference!