Indianapolis Community Meeting
Carmel Clay Library – Main, Meeting Room CJoin us for an in person meeting focused on connection, conversation and learning.
6:00 pm - 7:00 pm
6:30 pm - 8:30 pm
Join us for an engaging webinar on how to advocate for the polycystic kidney disease (PKD) community locally and beyond.
Join us for an engaging webinar on how to advocate for the polycystic kidney disease (PKD) community locally and beyond.
This session will provide an overview of the PKD Foundation’s current legislative priorities, the state of PKD research funding, and highlights from Advocacy Day on Capitol Hill. Helping lead this discussion is the Foundation’s advocacy partner, CURA Strategies, a leading bipartisan strategic communications and public affairs agency.
Whether you’re new to advocacy or looking for ways to deepen your involvement, this webinar will offer practical insights and next steps for making an impact in the PKD community today and for generations to come.
You’ll Learn About:
What PKD advocacy is and why patient and family voices are essential to advancing policy, research, and awareness
Gain insight into the role CURA Strategies plays in helping us shape federal policy initiatives for PKD
Ways patients and families can get involved in advocacy, regardless of prior experience or comfort level
Current PKD legislative priorities and research funding, including key takeaways from Advocacy Day on Capitol Hill
Who Should Attend?
Patients, families, and caregivers affected by PKD
Guest Speakers:
Scott Leezer, Senior Vice President, Government Relations & Partner, CURA Strategies
Patrick Meade, Senior Manager, Government Relations, CURA Strategies
Advocacy Champion: Cari Maxwell
Join us for an in person meeting focused on connection, conversation and learning.
Meet & Greet with Mount Sinai Partner Clinic: Advances in PKD Care & Diagnosis Updates
Mayo Rochester Video Conference 2026 Updates in PKD A patient-centered education event designed to help people with PKD feel informed and prepared throughout their journey. Hear from experts about diagnosis and early treatment, emerging PKD therapies, strategies for building confidence and capacity to manage your health, and transplant options for PKD patients. Dr Ranine Ghamrawi- Diganosis and Initial Treatment Dr Neera Dahl- Future PKD Treatments Kasey Boehmer, Ph.D, M.P.H. Capacity Coaching Dr Naim Issa, Transplant Options with PKD
Lace up your walking shoes and join us at Sutton Place Park for a fun morning of community, connection, and awareness! This event brings New York City together, uniting hospitals, medical centers, and advocacy organizations from across the city in support of the PKD community.
Join us at the Lakewood National Golf Club on October 26, 2026 for the PKD Applied Underwriters Invitational Golf Event, to raise funds to help end PKD!