Indianapolis Community Meeting
Carmel Clay Library – Main, Meeting Room CJoin us for an in person meeting focused on connection, conversation and learning.
6:00 pm - 7:00 pm
6:30 pm - 8:30 pm
Join us for a discussion with Dr. Paul Grimm, Pediatric Nephrologist at Stanford Medicine Children’s, to learn about the DISOT Study at Stanford.
Join us for a discussion with Dr. Paul Grimm, Pediatric Nephrologist at Stanford Medicine Children’s, to learn about the DISOT Study at Stanford. The DISOT (dual immune/solid organ transplant) study provides children with both stem cells and a kidney from the same donor—often a parent. This innovative approach allows the child to develop a new immune system that recognizes the kidney, enabling the body to accept the transplant without the need for long-term immunosuppressive medications. Please note: this study is not yet used for PKD.
Join us for an in person meeting focused on connection, conversation and learning.
Meet & Greet with Mount Sinai Partner Clinic: Advances in PKD Care & Diagnosis Updates
Mayo Rochester Video Conference 2026 Updates in PKD A patient-centered education event designed to help people with PKD feel informed and prepared throughout their journey. Hear from experts about diagnosis and early treatment, emerging PKD therapies, strategies for building confidence and capacity to manage your health, and transplant options for PKD patients. Dr Ranine Ghamrawi- Diganosis and Initial Treatment Dr Neera Dahl- Future PKD Treatments Kasey Boehmer, Ph.D, M.P.H. Capacity Coaching Dr Naim Issa, Transplant Options with PKD
Lace up your walking shoes and join us at Sutton Place Park for a fun morning of community, connection, and awareness! This event brings New York City together, uniting hospitals, medical centers, and advocacy organizations from across the city in support of the PKD community.
Join us at the Lakewood National Golf Club on October 26, 2026 for the PKD Applied Underwriters Invitational Golf Event, to raise funds to help end PKD!