National Capital Community Meeting
VirtualJoin us for our upcoming community meeting via video conference!
7:00 pm - 8:00 pm
7:00 pm - 8:30 pm
Join us to learn about the use of tolvaptan to treat ADPKD and ARPKD in children.
In 2018, the U.S. Food and Drug Administration (FDA) approved tolvaptan as the first treatment for adult patients with ADPKD in the U.S. Join us to learn about the use of tolvaptan to treat ADPKD and ARPKD in children. Katherine Dell, M.D., Pediatric Nephrologist at PKD Foundation Pediatric Center of Excellence, Cleveland Clinic Children’s, will lead our discussion and answer your questions. Mara, a PKD parent, will join us to share her family’s experience participating in clinical trials and the impact it has had on their daughter’s journey with PKD..
Join us for our upcoming community meeting via video conference!
Research Reflections: Voices of Clinical Trial Participants University of Maryland PKD Clinic
Enjoy an evening of gaming, live music, drinks and hors d'oeuvres for a cause. Proceeds benefit the PKD Foundation, whose mission is to give hope by funding research, advocating for patients and building a community for all impacted by PKD.
Join us for an in person meeting focused on connection, conversation and learning.
Meet & Greet with Mount Sinai Partner Clinic: Advances in PKD Care & Diagnosis Updates