Indianapolis Community Meeting
Carmel Clay Library – Main, Meeting Room CJoin us for an in person meeting focused on connection, conversation and learning.
6:00 pm - 7:00 pm
6:30 pm - 8:30 pm
Join us to learn about the use of tolvaptan to treat ADPKD and ARPKD in children.
In 2018, the U.S. Food and Drug Administration (FDA) approved tolvaptan as the first treatment for adult patients with ADPKD in the U.S. Join us to learn about the use of tolvaptan to treat ADPKD and ARPKD in children. Katherine Dell, M.D., Pediatric Nephrologist at PKD Foundation Pediatric Center of Excellence, Cleveland Clinic Children’s, will lead our discussion and answer your questions. Mara, a PKD parent, will join us to share her family’s experience participating in clinical trials and the impact it has had on their daughter’s journey with PKD..
Join us for an in person meeting focused on connection, conversation and learning.
Meet & Greet with Mount Sinai Partner Clinic: Advances in PKD Care & Diagnosis Updates
Mayo Rochester Video Conference 2026 Updates in PKD A patient-centered education event designed to help people with PKD feel informed and prepared throughout their journey. Hear from experts about diagnosis and early treatment, emerging PKD therapies, strategies for building confidence and capacity to manage your health, and transplant options for PKD patients. Dr Ranine Ghamrawi- Diganosis and Initial Treatment Dr Neera Dahl- Future PKD Treatments Kasey Boehmer, Ph.D, M.P.H. Capacity Coaching Dr Naim Issa, Transplant Options with PKD
Lace up your walking shoes and join us at Sutton Place Park for a fun morning of community, connection, and awareness! This event brings New York City together, uniting hospitals, medical centers, and advocacy organizations from across the city in support of the PKD community.
Join us at the Lakewood National Golf Club on October 26, 2026 for the PKD Applied Underwriters Invitational Golf Event, to raise funds to help end PKD!