ARPKD Research Fund Walk for PKD
The Walk for PKD ARPKD Research Fund invites you to join us anywhere, anytime and fundraise in whatever way suits you best!
When you participate in the Walk for PKD, you increase awareness, support families impacted by the disease, and raise critical funds to accelerate a cure for PKD.
To get started, register and start fundraising today!
The Walk for PKD unites patients, loved ones, and medical professionals in pursuit of a world without PKD. Registration opens June 2026. We hope to see you there! Learn more at walkforpkd.org.
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We’ll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Michele Karl
PKD Connect Ambassador | PKD Parent Community
Michele Karl is a mom to three boys, her three peas. Max who is 21, Nate who is 18, and Gabe who is 15. Max and Gabe were diagnosed with ARPKD in 2006 after Gabe was born with echogenic kidneys. Michele has been involved with the PKD Foundation ever since. Luckily the boys appear to be on the milder side for ARPKD and currently are both hovering around the 70% range for kidney function. They both also have high blood pressure and Gabe has some mild liver issues. Michele is always available to talk to parents with children with PKD. Besides advocating for her boys Michele is a special education preschool teacher, loves gardening and reading, and likes to make jewelry with vintage objects such as typewriter keys.
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March 3 | 9:00 am - 5:00 pm
- Advocacy
- Austin
- Baltimore
- Birmingham
- Charleston
- Charlotte
- Communities
- Detroit
- Hudson Valley
- Indianapolis
- Kansas City
- Long Island
- Los Angeles
- Milwaukee
- National Capital
- New Jersey
- New York
- Philadelphia
- Phoenix
- Pittsburgh
- PKD Parents
- PKD Parents
- Portland
- San Antonio
- Seattle
- South Florida
- St. Louis
- Thrive
- Twin Cities
March 5 | 9:00 am - 5:00 pm