Tips to empower yourself as a great patient advocate
Valen receiving support from her husband, Noah, after waking up from a recent procedure. Being a patient takes work and dedication. Depending on our health status, it can feel like...
PKD Foundation appoints past Fellowship recipient Michal Mrug, M.D., new Scientific Advisory Panel Chair
Michal Mrug, M.D., SAP Chair Meet Michal Mrug, M.D., Chair of the PKD Foundation Scientific Advisory Panel (SAP). The Scientific Advisory Panel is comprised of 14 of the most prestigious...
Navigating emotions
Valen with her parents the weekend of her PSC diagnosis, out at a fall community festival. When we endure health issues, we deal not only with our emotions, but also...
AR or AD? Young patient takes genetic testing to find her PKD type
Brittnee Boyd, Education Coordinator for the Orlando Chapter. At the PKD Foundation, we strive to give all types of patient experiences a voice in the community. Recently, an almost un-heard...
PKD patient shares experience with dialysis
Wayne Smith At the PKD Foundation, we honor various and unique patient perspectives to show the broad scope of experience that PKD patients face with this disease. This includes the...