Results Count : 195

Awareness and advocacy

Awareness and advocacy Advocacy We work with Congress, the Executive Branch and other regulatory agencies in Washington, D.C., to raise awareness of PKD and impact elected officials’ views on...

Key Messaging Talking Points

Key messaging and talking points There is a great need for early interventional treatments for PKD when they can have the greatest impact. There is a critical need for...

Pregnancy and PKD

Pregnancy and PKD The diagnosis of PKD is most commonly made by pre-symptomatic screening of at-risk patients with a positive family using ultrasonography which is inexpensive, safe, and readily...