by Sydney Johnston | Apr 28, 2020 | ADPKD Registry, Q and A, Research
Published April 28, 2020 | After the ADPKD Registry launched in September 2019, PKDF established the Registry Patient Advisory Group. The advisory group is pivotal in informing the Registry program how to maintain a patient-centric approach to our research...
by PKD Foundation Staff | Jan 16, 2020 | Awareness, Q and A, Research
Published January 16, 2020 Kai He, Ph.D. | Mayo Clinic PKD Foundation (PKDF): How did you first get involved in PKD research? Kai: After my Ph.D. training in molecular cell biology and biochemistry, I started my postdoctoral research at Mayo Clinic studying the...
by PKD Foundation Staff | Jun 4, 2019 | ADPKD Registry, Advocacy, Awareness, Education, Q and A
Published June 4, 2019 In May we announced the upcoming ADPKD Patient Registry, a collection of individuals with Autosomal Dominant Polycystic Kidney Disease (ADPKD). This month, we sat down with Elise Hoover, Director of Research at the PKD Foundation (PKDF), to...
by PKD Foundation Staff | May 29, 2019 | ADPKD, ARPKD, Education
On May 3–5, parents of children with ARPKD and ADPKD gathered in Chicago, Illinois, for the PKD in Children conference. The event is a destination for parents to receive essential information on managing a child’s health when they live with PKD. What did attendees...
by PKD Foundation Staff | May 14, 2019 | ADPKD Registry, Advocacy, Awareness, Education
Published May 14, 2019 PKD patients are very well-informed about their disease and its consequences. As a disease impacting multiple generations or appearing unexpectedly as a spontaneous mutation, patients and their families witness first-hand the progression of the...
