by admin | Nov 1, 2016 | ADPKD, Dialysis, Living with PKD, Transplantation
Finding hope and new life through a long-lost family bond I was diagnosed with PKD in 1987 at the age of 27. This was not a big surprise for me, especially since my father, grandmother and aunt all had the disease. The surprise was who donated a kidney to me—my niece,...
by admin | Oct 27, 2016 | ADPKD, PKD Parents
Voices of PKD: Kristen Neary On May 24, 2002, my husband Keith and I welcomed our first daughter, Helen Grace into the world. She was perfect on the outside and let out a cry after being born. This was a sound we were so relieved to hear. When I was seven months...
by admin | Oct 18, 2016 | ADPKD, PKD Parents
Voices of PKD: Megan Kuck In February 2005, my husband and I had a second ultrasound to help us determine the gender of our second child. During the ultrasound, the tech went quiet and told us that she would be right back. In just a few moments, the room was filled...
by admin | Oct 17, 2016 | ADPKD, PKD Parents
Voices of PKD: Lauren Highfill We have lost two babies to polycystic kidney disease (PKD). Ironically they both passed away on July 21st (one year apart). It makes remembering this sad day a little easier to have it all on one day! I suppose the biggest way we honor...
by admin | Oct 14, 2016 | ADPKD, PKD Parents
Voices of PKD: Mandy Wakely On December 10, 2008 my daughter Juniper Isabelle Wakely was born. Twenty minutes later, she died in my arms from autosomal recessive polycystic kidney disease (ARPKD). Even with all the planning I’d done in preparation for my first child,...
