by admin | Jun 2, 2016 | ADPKD, Caregivers, Transplantation
I didn’t want my uncle to be taken away so I just stepped in and helped. Many families carry genetic burdens of disease. Illnesses like breast cancer or chronic issues such as high blood pressure are frequently attributed to family history. For Candi Zitzka, her...
by admin | Jun 2, 2016 | ADPKD, Living with PKD
LeeAnn Hujanen went through a dramatic turn of events that led to her PKD diagnosis on April 11, 2013. Adopted as a child, LeeAnn was unsure of her biological medical history, and didn’t know PKD ran in her biological family. In 1999, while she was pregnant with...
by admin | Jun 2, 2016 | ADPKD, Living with PKD, Transplantation
By Stephanie Bost My family’s transplant journey began 15 years ago with my grandmother Jean, who was just days away from beginning dialysis to combat the devastating renal failure caused by PKD. In 1997, she received a phone call that would change her life....
by admin | Jun 2, 2016 | ADPKD, Dialysis, Living with PKD, Transplantation
Never lose hope. That’s Carol Mainolfi’s advice to anyone who is waiting for a kidney transplant. She would know – she received one after three years on dialysis and one failed transplant. “I feel like a different person,” said Carol, who...
by admin | Jun 2, 2016 | ARPKD, Living with PKD, PKD Parents
Sara Mann is no stranger to the center stage. As an accomplished musician, songwriter and Broadway performer, she has taken her rightful place in that arena on a number of occasions. When she and her husband, Alex, learned they were pregnant with twins, they were...
