Join Our Network

Follow our progress on PKD research, treatments, clinical trials, and finding a cure.

Subscribe to PKD News

By clicking Join Our Network you’re confirming that you agree with our Terms & Conditions.

Need Help Now?

To access our assistance directly, please call our Hope Line.
(8 a.m. - 5 p.m. CT)

Call us at 816-931-2600
PKD Resources
PKD Handbooks and Guides

Looking for trusted, easy-to-understand information about living with PKD? Download a variety of free patient education handouts, including our ADPKD and ARPKD handbooks, that you can print right at home or in your office. 

Find Your Community

PKD Communities, both local and virtual, are a place where everyone is welcome: PKD patients, caregivers, family members, researchers, clinicians, and friends. You’ll find opportunities to learn, connect, act, and ensure no one faces PKD alone. 

Find PKD Care

Find the care you need with the PKD Foundation’s Centers of Excellence and Partner Clinics—our nationwide network of clinics dedicated to delivering high-quality, specialized PKD care. 

Ways to Get Involved
woman at computer ADPKD Registry

Help make more PKD research possible. By joining the ADPKD Registry, you can share your ADPKD experiences to help researchers better understand the disease and shape future discoveries. It can even connect you with clinical trials.

PKD Cures Act

The PKD Cures Act (H.R. 9169) is the first federal bill focused exclusively on advancing research and innovation for polycystic kidney disease. Send a pre-drafted message to your Representative and help us get this bill turned into law.

Become a PKD Foundation Volunteer

Volunteering with the PKD Foundation is your chance to be a driving force in the fight against PKD. Whether you’re lending a hand at fundraising events, sharing your skills in advocacy efforts, or offering support to fellow community members, your time and dedication is invaluable.

Giving Tuesday 2026

Giving Tuesday, December 1, is a global day of giving back and the perfect time to help support families impacted by PKD. Save the date to remember to get involved!