by Sydney Johnston | Oct 5, 2023 | Advocacy, Transplantation
Published on October 3, 2023 | On Friday, September 22, 2023, President Biden signed the Securing the U.S. Organ Procurement and Transplantation Network Act (P.L. 118-140) into law. Through this law, we’ll modernize and improve the Organ Procurement and...
by Sydney Johnston | Sep 14, 2023 | Advocacy
Published on September 14, 2023 | Aside from funding research, one of the best ways to drive change in the PKD community is through advocacy. One way you can take part in PKD advocacy is by joining the Advocacy Champions Network (ACN). Applications are now open for...
by Sydney Johnston | Sep 4, 2023 | ADPKD, ARPKD, Awareness
Published on September 5, 2023 | Today, we celebrate PKD Awareness Day. While polycystic kidney disease (PKD) affects millions of lives worldwide, yet its awareness often remains overshadowed by more well-known health concerns. Every September 4, PKD Awareness Day...
by Sydney Johnston | Aug 3, 2023 | ADPKD Registry, Research
Published on August 3, 2023 | In 2019, the PKD Foundation launched the ADPKD Registry, the first national patient-centered registry for people with autosomal dominant polycystic kidney disease. Four years later, the Registry has successfully opened much-needed avenues...
by Sydney Johnston | May 25, 2023 | Research
Published on May 23, 2023 | On May 10, the ongoing FALCON clinical trial was terminated early. FALCON is a Phase 3 clinical study evaluating the effectiveness and safety of bardoxolone methyl (an oral investigational drug) in patients with ADPKD. The study aimed for...
