by Sydney Johnston | Sep 29, 2020 | Awareness, Walk for PKD
In two weeks, members of the PKD community will unite for a 10-day virtual Walk for PKD. Months of planning, fundraising, and organizing will culminate in the nation’s largest public awareness event for PKD. During the 10 day event, we’ll bring awareness to PKD,...
by Sydney Johnston | Sep 22, 2020 | Caregivers, Education
Published September 22, 2020 | When your loved one has PKD but lives hundreds of miles away or more, staying involved as a PKD caregiver can be trying. Mary Perry, of Antioch, Illinois, learned that firsthand when her son Michael was living in South Carolina and was...
by Sydney Johnston | Sep 15, 2020 | Awareness, Transplantation
Published September 15, 2020 | With an ADPKD diagnosis, there’s more than a 50% chance a patient will develop kidney failure by age 50. Dialysis or a kidney transplant is the only treatment option once a person has kidney failure. Choosing to pursue a...
by Sydney Johnston | Sep 8, 2020 | ADPKD Registry, Awareness, Research
Published September 8, 2020 | When the PKDF launched the ADPKD Patient Registry a year ago, our goal was to build a network of ADPKD patients from whom we could learn about their experience with the disease in a standardized format. We wanted to make research more...
by Sydney Johnston | Sep 1, 2020 | Awareness, Knowledge
Published September 1, 2020 | On September 4th, we celebrate PKD Awareness Day. A day dedicated to educating and inspiring our friends, families, and communities to learn about PKD. When more people learn about PKD, more people get involved. And that means more...
