by Sydney Johnston | Dec 6, 2022 | Recipes
Published on December 08, 2022 | As the weather grows colder and we settle into the holiday season, it’s time for soup. This recipe for a creamy carrot and thyme soup from our cookbook, Cooking Well, is low in sodium, low in protein, high in fluids, and reduces...
by Sydney Johnston | Dec 1, 2022 | ARPKD, Caregivers
Published on December 1, 2022 | How do you know when it’s time to skip waiting for a doctor’s appointment and going straight to the ER? That’s a decision many parents face as caregivers to children with ARPKD. There are a few things that can help you...
by Sydney Johnston | Nov 22, 2022 | PKD Foundation News
Published on November 22, 2022 | At the PKD Foundation, we’re constantly evaluating how we can better help patients and families get the PKD care they need. In recent years, more and more data is highlighting inconsistencies in quality of care. It’s time...
by Sydney Johnston | Nov 14, 2022 | Awareness, Caregivers
Published on November 14, 2022 | In November, we celebrate National Family Caregivers Month. Family caregivers are a crucial pillar of our healthcare system, proving necessary care to their loved ones. Jennifer Visda knows firsthand what life is like as a family...
by Sydney Johnston | Nov 1, 2022 | Advocacy, Awareness
Published on November 1, 2022 | This year, the PKD Foundation created the Peer Ambassadors program. Established to build new bridges between the Foundation and previously underserved communities. Recently, two Peer Ambassadors, Tatiana Mangwi and Alyssia Gomez,...