Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
A good day
When you live with chronic health issues, the definition of a good day can be much simpler than what most people think. I have also learned that we cross paths with people for a reason. There are...
The will to survive, part 2
In a split second our world and our health can change dramatically. We can go from being healthy to severely ill, thinking we are fine while relaxing on the couch and then spiking a fever and...
The will to survive, part 1
I flew to my birthplace of York, Pa. at the beginning of May to say my goodbyes to my paternal grandmother, who passed on April 11, 2017, and to support my family. I stood in the mausoleum where...
A letter from a PKD patient to her mom
Dear Mom, Happy Birthday! You are 61! Wow! The first word that comes to mind is ‘hallelujah!’ With living cross-country from each other—from California to Pennsylvania—for seven years now, I am...
Before and after transplant: a Q&A with Nicole and Valen
As our friend and colleague Nicole Harr prepares for her upcoming kidney transplant, we arranged a Q&A between her and longtime blog contributor Valen Keefer to help her and others learn more...
-
A couple weeks ago, on the evening of August 12, my husband Noah and I were sitting in beach chairsRead More
-
Dear Sally, Many of us only get one chance at life. A chance to grow up, dream big, find ourRead More
-
I believe health issues become harder to face as we age. As children, we don’t analyze and worry about thingsRead More
-
When you live with chronic health issues, the definition of a good day can be much simpler than what mostRead More
-
In a split second our world and our health can change dramatically. We can go from being healthy to severelyRead More
-
I flew to my birthplace of York, Pa. at the beginning of May to say my goodbyes to my paternalRead More
