Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Third graders’ perspective on PKD
We all have different perspectives on life and living with PKD. Our uniqueness makes the world a beautiful place, and we can all learn and grow from each other. After speaking to more than 85...
Life Beyond PKD
As children, we are encouraged to get involved in pastimes such as sports, clubs and hanging out with friends. I recall doing ballet, gymnastics, singing lessons, piano and sleepovers with...
Celebrate PKD Awareness Day
Awareness is a big part of my life: being aware of my health, how I am feeling, knowing that I am taking the best care of myself and being an educated patient, being mindful of others and...
Dad’s steadfast support
Disclaimer: This post contains an instance of graphic detail regarding the effects of internal bleeding. Noah and I have lived across the country from family and friends for six years. We often...
14 years of life post-transplant
Some things are too grand for the mind to comprehend. For example, I am having trouble processing that my 14-year kidney transplant anniversary will be two days from now. It’s hard to think that,...
Finding the Positives
When hearing the words polycystic kidney disease, it is easy to think that we endure a disease that only affects our kidneys. However, PKD is far more than that. We can face issues like...
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In life, we are often encouraged to follow our heart and listen to our gut. It simply means to trustRead More -
My neurologist recently informed me that the common triggers for seizures are low magnesium, lack of sleep and stress. AtRead More
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Before Noah and I moved from Pennsylvania to California in May of 2010, he asked my dad for my handRead More
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We all have different perspectives on life and living with PKD. Our uniqueness makes the world a beautiful place, andRead More
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As children, we are encouraged to get involved in pastimes such as sports, clubs and hanging out with friends. IRead More
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Awareness is a big part of my life: being aware of my health, how I am feeling, knowing that IRead More
