Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Communicating With Your Doctor
I’ve been seeing nephrologists for 23 years since my diagnosis of PKD when I was 10 years old. The first time I met my pediatric nephrologist, I was told: PKD was one of the best diseases to have...
Toast to a Cure
It’s healing and inspiring when we take something that tried to knock us down and use what we’ve learned to lift others up. This was illustrated last Saturday at the PKD Foundation Sacramento...
Love Your Body
Loving ourselves is all encompassing, both internally and externally. If 20 women were to stand side by side, each would have a different physique and characteristics, making them unique. Yet, we...
Love Yourself
Loving others seems natural, but loving ourselves isn’t always as simple. Why is this hard sometimes? Think of how many outward expressions of love we give on a daily basis. We tell our husband,...
The Power of Love
"All you need is love, love. Love is all you need." - The Beatles We tend to connect Valentine’s Day to romantic relationships. However, love comes in many forms and can affect our lives in a...
Loving Life
Growing up, I never imagined what life would be like in my 30s. I never had a grand plan for how my future would unfold. I think my health issues kept me grounded with the belief that each new...
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Today wraps up 31 Days of PKD Challenges. It has been fun to see the heightened PKD awareness being spreadRead More
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We all have a story. Whether your PKD is a spontaneous mutation, hereditary, ADPKD, ARPKD or you are a caregiverRead More
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I was in my early 20s when I first typed “PKD” in Google’s search engine. That was 12 years agoRead More
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I’ve been seeing nephrologists for 23 years since my diagnosis of PKD when I was 10 years old. The firstRead More
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It’s healing and inspiring when we take something that tried to knock us down and use what we’ve learned toRead More
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Loving ourselves is all encompassing, both internally and externally. If 20 women were to stand side by side, each wouldRead More