Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Thank You a Hundred Times
In the two years I have been writing this weekly blog, I’ve written it in many places, from an airplane to a hospital bed. As an old soul and deep thinker, I have shared personal thoughts,...
Medical Athlete
My husband and I live in Auburn, CA, known as "The Endurance Capital of the World.” The Auburn State Recreation Area is within walking distance from our home. This breathtaking park has more...
Her Last Words
As toddlers we may be scared of bugs. Children might fear the dark. Adolescents may dread what others think of them. Adults’ concerns can be relationships, careers, homes, money, family and much...
Good Luck Charm
I carry symbols of luck with me daily. In my change purse you will find a United States Marine Corps Semper Fidelis Master Gunnery Sergeant coin, which was given to me by a dear friend, Ed Loch,...
Pet Therapy
They say timing is everything. It was a gorgeous CA evening last fall when a dear stray cat walked down our driveway and into our lives and hearts. Noah knelt down and the kitty cautiously walked...
Body Image and a PKD Belly
The surgeon who removed my PKD kidneys when I was 18 years old said I looked “11 months pregnant.” Some of us look normal on the outside although our kidneys and/or liver are enlarged and...
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Some people are scared of the unknown and don’t give it a chance to see how beautiful it can be.Read More -
I strongly connected with the story of a butterfly cocoon that was shared in Robin Roberts’ memoir, ‘Everybody’s Got Something.’Read More
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Our neighbor is an avid cyclist and has completed a 100-mile run. I asked him if he has ever wokenRead More
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In the two years I have been writing this weekly blog, I’ve written it in many places, from an airplaneRead More
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My husband and I live in Auburn, CA, known as “The Endurance Capital of the World.” The Auburn State RecreationRead More
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As toddlers we may be scared of bugs. Children might fear the dark. Adolescents may dread what others think ofRead More
