Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Everybody’s Got Something
I love to ‘people watch.’ Like when I’m sitting in the car at a red signal light and vehicles are turning in front of me. I wonder where they are headed, what their everyday life is like, and I...
Worry Some – Hope More
Did I do something wrong that increased my creatinine? Why is ‘that’ number elevated on my blood work results and my doctor can’t find a cause? When the time comes, will I have a kidney donor?...
We’re Better Together
As a grade school student, I often ended up in the nurse’s office due to excruciating kidney pain. After a role in a school play that called for me to have a pretend fainting scene, a cyst on my...
Day to Day
I am a visual person who likes to see results. I have an unwavering desire to heal and willingness to work hard to achieve that goal. I’d prefer to push myself than follow the ‘easy-does-it’...
Listen and Learn
When we let our guard down and share our thoughts, our souls are revealed. As we wrap up Donate Life Month I want to pass along some insight from several transplant recipients. I asked them to...
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I carry symbols of luck with me daily. In my change purse you will find a United States Marine CorpsRead More
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They say timing is everything. It was a gorgeous CA evening last fall when a dear stray cat walked downRead More
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The surgeon who removed my PKD kidneys when I was 18 years old said I looked “11 months pregnant.” SomeRead More
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I love to ‘people watch.’ Like when I’m sitting in the car at a red signal light and vehicles areRead More
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Did I do something wrong that increased my creatinine? Why is ‘that’ number elevated on my blood work results andRead More