Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Research Spotlight: Laura Onuchic, M.D.
Published on June 28, 2022 | Laura Onuchic, M.D., Yale School of Medicine How did you first get involved in PKD research? Laura Onuchic: The fight against PKD has been a part of my life...
RideForPKD: Part 2
Published on June 21, 2022 | A PKD patient, advocate, and PKDF volunteer, Glenn Frommer organized the RideForPKD to raise $500,000 for PKD research. On May 1, Glenn Frommer kicked off his journey...
PKD Genetic Testing: What to Know
Published on June 14, 2022 | With polycystic kidney disease, there is a 50% chance of passing the disease to children. Due to the high chance of passing PKD to future generations, many have...
ACN Spotlight: Lainie Esquivel
Published on June 7, 2022 | In order to advocate for our community, we formed the Advocacy Champions Network (ACN). The ACN connects advocates to their local legislators, helping further...
PKDCON 2022: Connecting Our Community
Published on May 31, 2022 | In the early 2000s, the PKD Connect Conference originated as the PKD Foundation National Convention. This educational event brings together every part of the PKD...
Managing Mental Health and PKD
Published on May 24, 2022 | May is Mental Health Awareness Month. With chronic illnesses, like ARPKD and ADPKD, mental health is an important factor of your overall care plan. Whether you're a...
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Published on June 28, 2022 | Laura Onuchic, M.D., Yale School of Medicine How did you first get involvedRead More -
Published on June 21, 2022 | A PKD patient, advocate, and PKDF volunteer, Glenn Frommer organized the RideForPKD to raiseRead More -
Published on June 14, 2022 | With polycystic kidney disease, there is a 50% chance of passing the disease toRead More -
Published on June 7, 2022 | In order to advocate for our community, we formed the Advocacy Champions Network (ACN).Read More -
Published on May 31, 2022 | In the early 2000s, the PKD Connect Conference originated as the PKD Foundation NationalRead More -
Published on May 24, 2022 | May is Mental Health Awareness Month. With chronic illnesses, like ARPKD and ADPKD, mentalRead More
