Upcoming
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March 1 | 12:00 am - 11:59 pm
- Austin
- Baltimore
- Birmingham
- Charleston
- Charlotte
- Communities
- Detroit
- Hudson Valley
- Indianapolis
- Kansas City
- Long Island
- Los Angeles
- Milwaukee
- National Capital
- New England
- New Jersey
- New York
- Philadelphia
- Phoenix
- Pittsburgh
- PKD Parents
- Portland
- San Antonio
- Seattle
- South Florida
- St. Louis
- Thrive
- Twin Cities
March 12 | 12:00 am - 11:59 pm
- Communities
- Los Angeles
March 14 | 10:00 am - 12:00 pm
- Communities
- PKD Parents
March 18 | 7:30 pm - 8:30 pm
- Advocacy
- Communities
March 24 | 7:00 pm - 8:30 pm
Neha Jaeel
PKD Connect Ambassador
Contact your local PKD Connect Ambassador to learn about local activities and connect with others in your community that understand what you are going through.
Neha has recently moved from India to the US and is encouraged by the support groups and open discussions around PKD in the US. She is motivated to support families and caregivers of multi-generational PKD to be able to leverage the wide research and care resources available across the globe.
Tennille Leak-Johnson
PKD Connect Ambassador
Contact your local PKD Connect Ambassador to learn about local activities and connect with others in your community that understand what you are going through.
Recently diagnosed with ADPKD, I experienced the shock, fear, and uncertainty that often come with hearing those words for the first time. I remember leaving the doctor’s office with so many questions and immediately searching for a PKD support group, hoping to find someone who understood what I was feeling. That moment showed me how much connection matters. Living with PKD has taught me lessons no class room or research study ever could the importance of hope, the power of knowledge, and the strength that comes from community. This journey has deepened my compassion and has shaped how I want to show up for others navigating this path.
PKD can feel overwhelming, but community changes everything. Through PKDF, I want to contribute to the support I once searched for, especially in those first, uncertain moments. My focus is on building a local space where individuals and families feel informed, encouraged, and never alone.
Walk for PKD - Your Way
Walk for PKD - Your Way! is an opportunity to join the nationwide Walk for PKD community in a way that caters to your schedule and interests while keeping things simple. Walk for PKD - Your Way! offers you the freedom to choose – how, when, and where you Walk for PKD. Participate as an individual or a team of loved ones, select a date and decide how you are going to Walk for PKD Your Way. How you raise awareness and funds for PKD research is up to you!
If you have questions, or would like to help with next year's walk, please reach out to us at walkforpkd@pkdcure.org.
Get Involved
Are you interested in helping us grow the Atlanta Community?
We are looking for volunteers to help us offer more opportunities in your local area. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please complete our volunteer form and let us know how you would like to get involved.
If you have questions, please email us at volunteers@pkdcure.org.
If you have questions, or would like to help with next year's walk, please reach out to us at walkforpkd@pkdcure.org.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Peer Mentorship Program
If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:
- Interested in connecting with a mentor? Please take a moment to fill out our mentee survey and our team will follow up with you via email or by phone.
- Interested in becoming a peer mentor? Please complete our mentor application and a member of our staff will follow up with you by email or by phone.
Walk for PKD
The Walk for PKD unites patients, loved ones, and medical professionals in pursuit of a world without PKD. Registration opens June 2026. We hope to see you there!
Centers of Excellence
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
ADPKD Registry
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.