by Sydney Johnston | Nov 9, 2021 | Awareness, Caregivers
Published on November 9, 2021 | November is National Family Caregivers Month. During this month, we recognize the important role of family caregivers. It offers an opportunity to raise awareness of caregiving issues, educate communities, and increase support for...
by Sydney Johnston | Nov 2, 2021 | ADPKD, Research
Published on November 2, 2021 Feng Qian, Ph.D., University of Maryland School of Medicine How did you first get involved in PKD research? Feng: I first got involved in PKD research at my postdoctoral fellowship at Yale and then Johns Hopkins University. The...
by Sydney Johnston | Oct 26, 2021 | Recipes
Published on October 26, 2021 | The leaves are changing, the air is crisp, and sweater weather is here to stay. That means it’s time for football games and holidays with friends and family. In need of a PKD-friendly recipe for your next event? Or maybe just a...
by Sydney Johnston | Oct 19, 2021 | ADPKD, Research
Published on October 19, 2021 | As a genetic disease, ADPKD (autosomal dominant polycystic kidney disease) is caused by mutations in either the PKD1 or PKD2 gene. These genes encode the proteins polycystin-1 and polycystin-2, respectively, which together form the...
by Sydney Johnston | Oct 7, 2021 | Advocacy
Published on October 7, 2021 | For nearly 40 years, the Orphan Drug Tax Credit (ODTC) has served as an incentive to research and produce medications that are safe and effective for rare conditions, such as PKD. It allows companies to write off 25% of qualified...