by Sydney Johnston | Oct 26, 2021 | Recipes
Published on October 26, 2021 | The leaves are changing, the air is crisp, and sweater weather is here to stay. That means it’s time for football games and holidays with friends and family. In need of a PKD-friendly recipe for your next event? Or maybe just a...
by Sydney Johnston | Oct 19, 2021 | ADPKD, Research
Published on October 19, 2021 | As a genetic disease, ADPKD (autosomal dominant polycystic kidney disease) is caused by mutations in either the PKD1 or PKD2 gene. These genes encode the proteins polycystin-1 and polycystin-2, respectively, which together form the...
by Sydney Johnston | Oct 7, 2021 | Advocacy
Published on October 7, 2021 | For nearly 40 years, the Orphan Drug Tax Credit (ODTC) has served as an incentive to research and produce medications that are safe and effective for rare conditions, such as PKD. It allows companies to write off 25% of qualified...
by Sydney Johnston | Oct 5, 2021 | Knowledge, Living with PKD
Published on October 5, 2021 | Anyone can get a urinary tract infection (UTI), but having PKD can increase your risk of UTIs. One reason is that kidney cysts are prone to infection, allowing bacteria to build up and affect the urinary tract. Symptoms of UTIs include...
by Sydney Johnston | Sep 28, 2021 | Awareness
Published on September 28, 2021 | PKD takes an enormous toll on the families it impacts. A PKD diagnosis can be overwhelming—full of questions, fears, and uncertainties. Because it’s a genetic disease, PKD can affect generation after generation in a family. In...