by Sydney Johnston | Jan 26, 2021 | ADPKD Registry, Research
Published on January 26, 2021 | Staff at the PKD Foundation know that without patient stories, we couldn’t understand what it’s like to live with PKD. We’re always leaning on patient perspectives: when we talk with researchers about new studies, when...
by Sydney Johnston | Jan 19, 2021 | Donations, Knowledge
Published on January 19, 2021 | Want to raise funds that benefit the PKD community but not sure where to start? Through the Fundraise Your Way program, it’s easy to fundraise for PKDF. Senior Director of Community Fundraising Sue Full walks us through the basics...
by Sydney Johnston | Jan 12, 2021 | ADPKD, Research
Published January 12, 2021 Sorin Fedeles, M.S., Ph.D., Yale University How did you first get involved in PKD research? Sorin: When I first came to Yale, my main goal was to undertake biomedical research studies rooted in asking the right questions and pursuing the...
by Sydney Johnston | Jan 5, 2021 | ADPKD, Advocacy
Published on January 5, 2020 | Research is a term often thrown around to describe everything from complex, controlled experiments to some light Google searching to find your favorite celebrity’s height. When we consider the value of medical research, though, it’s...
by Sydney Johnston | Dec 22, 2020 | PKD Foundation News
Published on December 22, 2020 | It’s safe to say 2020 was a whirlwind of a year. From learning to social distance to pivoting to virtual events, the COVID-19 pandemic has meant adapting our personal and professional lives. But despite all the changes, it never...
