by Sydney Johnston | Oct 27, 2022 | Advocacy
Published October 27, 2022 | On June 30, the FY23 HouseLabor, Health and Human Services, and Education (LHHS) Appropriations bill passed the Appropriations Committee. The bill report language includes a $5 million increase to support the chronic kidney disease...
by Sydney Johnston | Oct 20, 2022 | Education
Published on October 20, 2022 | Have you ever thought about your PKD legacy? This week, we’re celebrating National Estate Planning Awareness Week. One way to create a PKD legacy is by including the PKD Foundation in your estate plan. Estate Plan Basics...
by Sydney Johnston | Oct 15, 2022 | ARPKD, Caregivers, Family Life
Published on October 15, 2022 | Today is Pregnancy and Infant Loss Remembrance Day. Every October 15, we honor we honor lost pregnancies and infant deaths which includes miscarriages, still births, and of course, ARPKD. A rare genetic disorder, autosomal recessive...
by Sydney Johnston | Oct 11, 2022 | Uncategorized
Published October 11, 2022 | Every year, PKD Awareness Day is celebrated through special ceremonies and activities to educate others about PKD and advocate for the PKD Community. With a recent resolution passing in the Senate, this day is now officially designated as...
by Sydney Johnston | Sep 27, 2022 | Uncategorized
Published on September 27, 2022 | The heat is fading and fall activities are popping up. Whether it’s for a football game, movie night, or fall potluck, we can all use another PKD-friendly snack option. This recipe for a seven-layer dip from our cookbook,...
