Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Voices of PKD: Judy Ashley
To know me is to know my family and PKD: how PKD defines my family, but does not hold us back. How PKD is in our daily thoughts, but does not hold us back. How PKD challenges us, but does not...
Teen blogger plans to raise PKD awareness through modeling career
My name is Paige Trischler, but I also go by Elisabeth Rae. I am 16 and from Pittsburgh, Penn. I was diagnosed with PKD in October 2015 and got in involved with the PKD Foundation through going...
Brand new: agenda released for the 2019 PKD in Children Conference
We're only a couple months out from the 2019 PKD in Children Conference, and if you're a PKD parent, this is a can't-miss event! Join us in Chicago from May 3 to 5 for an amazing opportunity to...
PKDF Director of Government Affairs recaps an eventful Rare Disease Week
This past week, 450 rare disease advocates and patients descended on Washington, D.C., for Rare Disease Week, and I was glad to be amongst them. It was a packed agenda with four days of...
Fundraise Your Way: Connecticut father turns homebrew passion into thousands in honor of infant son’s memory
Our Fundraise Your Way program is one of the best ways you can help create a future without PKD. When you turn your hobbies or passions into creative fundraisers, 100% of the money you raise goes...
Transplant recipient celebrating “the sweetest gift of all” this National Donor Day
We're spreading double the love today for National Donor Day! In the US alone, more than 120,000 people are waiting for a life-saving organ donation. We recently reached out to New England...
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For this week of National Kidney Month, our challenge to you was to tell someone new! Spreading the word isRead More -
There are some truly fascinating techniques in the research field being used to help increase our understanding of PKD. ThisRead More -
Earlier this week, I joined over 200 people from pharma, biotech, patient advocacy, regulatory agencies and patients at Patients asRead More -
To know me is to know my family and PKD: how PKD defines my family, but does not hold usRead More -
My name is Paige Trischler, but I also go by Elisabeth Rae. I am 16 and from Pittsburgh, Penn. IRead More
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We’re only a couple months out from the 2019 PKD in Children Conference, and if you’re a PKD parent, thisRead More
