Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Navigating Emergency Care for ARPKD
Published on December 1, 2022 | How do you know when it's time to skip waiting for a doctor's appointment and going straight to the ER? That's a decision many parents face as caregivers to...
Introducing PKD Foundation Centers of Excellence
Published on November 22, 2022 | At the PKD Foundation, we're constantly evaluating how we can better help patients and families get the PKD care they need. In recent years, more and more data is...
What It’s Like Being a Family Caregiver
Published on November 14, 2022 | In November, we celebrate National Family Caregivers Month. Family caregivers are a crucial pillar of our healthcare system, proving necessary care to their loved...
Peer Ambassadors Raising Awareness and Inspiring Hope
Published on November 1, 2022 | This year, the PKD Foundation created the Peer Ambassadors program. Established to build new bridges between the Foundation and previously underserved communities....
FY23 PKD Advocacy Update
Published October 27, 2022 | On June 30, the FY23 HouseLabor, Health and Human Services, and Education (LHHS) Appropriations bill passed the Appropriations Committee. The bill report language...
5 Reasons to Make Your PKD Legacy Estate Plan
Published on October 20, 2022 | Have you ever thought about your PKD legacy? This week, we're celebrating National Estate Planning Awareness Week. One way to create a PKD legacy is by including...
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Published on December 1, 2022 | How do you know when it’s time to skip waiting for a doctor’s appointmentRead More -
Published on November 22, 2022 | At the PKD Foundation, we’re constantly evaluating how we can better help patients andRead More -
Published on November 14, 2022 | In November, we celebrate National Family Caregivers Month. Family caregivers are a crucial pillarRead More -
Published on November 1, 2022 | This year, the PKD Foundation created the Peer Ambassadors program. Established to build newRead More -
Published October 27, 2022 | On June 30, the FY23 HouseLabor, Health and Human Services, and Education (LHHS) Appropriations billRead More -
Published on October 20, 2022 | Have you ever thought about your PKD legacy? This week, we’re celebrating National EstateRead More