Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
2021 Walk for PKD: Your Questions Answered
Published July 13, 2021 | For over 20 years, the Walk for PKD has thrived as the PKDF’s signature fundraising and public awareness event. Last year, the COVID-19 pandemic meant changing the Walk for PKD from an in-person event to virtual. We couldn't be more...
How I’m Raising PKD Awareness
Published July 08, 2021 | When you receive a diagnosis, it's easy to focus on the negatives. Instead of being pessimistic, Rob Herman is focused on creating change for PKD. Today, he details his experience with PKD, how he spreads PKD awareness, and his creative...
When a Clinical Trial Fails
Published on June 29, 2021 | On June 1, the STAGED-PKD study was halted due to an inability to meet futility criteria. The study was looking at an investigational drug called venglustat to treat ADPKD. Over 500 patients signed up to participate. What does it mean...
Researcher Spotlight: Xiangqin Cui, Ph.D.
Published on June 22, 2021 Xiangqin Cui, Ph.D., Emory University How did you first get involved in PKD research? Xiangqin: When I was a postdoc in Dr. Gary Churchill’s lab at the Jackson Laboratory, Dr. Churchill had collaborations with Dr. Lisa...
Protecting Living Donors: State Level Advancements
Published on June 15, 2021 | We’ve seen firsthand the power of collaboration to enact meaningful change in health care. By pulling together institutions and advocates, we can transform policy for kidney patients and living donors. During the last Congress, the PKD...
How the PKD Foundation Furthers PKD Research
Published on June 8, 2021 | At the PKD Foundation, creating a world free of PKD is our ultimate goal. In order to make that goal a reality, more PKD research is needed. Over the past 40 years, we've evolved from not only a funder, but a doer of research. Let's dive...
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Published July 13, 2021 | For over 20 years, the Walk for PKD has thrived as the PKDF’s signature fundraisingRead More -
Published July 08, 2021 | When you receive a diagnosis, it’s easy to focus on the negatives. Instead of beingRead More -
Published on June 29, 2021 | On June 1, the STAGED-PKD study was halted due to an inability to meetRead More -
Published on June 22, 2021 Xiangqin Cui, Ph.D., Emory University How did you first get involved in PKD research?Read More -
Published on June 15, 2021 | We’ve seen firsthand the power of collaboration to enact meaningful change in health care.Read More -
Published on June 8, 2021 | At the PKD Foundation, creating a world free of PKD is our ultimate goal.Read More