Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Empowering better tomorrows through PKD Connect Peer Mentoring Program
At the PKD Foundation, we’re proud to offer support through the PKD Connect Peer Mentor Program. This program is designed to help facilitate and build a strong support system for mentees with the...
Meet the PKD Foundation’s new Director of Research
In late September of this year, we welcomed our new Director of Research, Elise Hoover, to the PKD Foundation staff. We reached out to Elise to hear more about her background with PKD research...
Getting to know your transplant center webinar review
Our recent transplantation webinar with Melissa Blevins Bein, Executive Director of Transplant Programs at UC Davis Medical Center, was a hit! Registration filled up fast, but not before Memphis...
What is love?
In honor of October being Pregnancy and Infant Loss Remembrance Month, we want to recognize families who have lost loved ones to PKD. We recently reached out to Melissa Justice, a member of the...
Local volunteer leader gives an inside look at the St. Louis Chapter
My name is Jean Sommer and I am the St. Louis Chapter and Walk Coordinator. In 2001, I was diagnosed with ADPKD2. My sister and brother have it also. My sister and I have rare massive Polycystic...
Mother who lost two sons to ARPKD takes on mission to help other affected families
In honor of October being Pregnancy and Infant Loss Remembrance Month, we want to recognize families who have lost loved ones to PKD. We recently reached out to Marquila Turner, a member of the...
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This year’s American Society of Nephrology (ASN) Kidney Week took place in San Diego, CA, from Oct. 25 to 28.Read More -
#GivingTuesday is right around the corner, and this year, we’re asking: what can you give? Can you give a donation?Read More -
Nicole Harr, our Director of Community Engagement, has officially received the gift of life! Now post-transplant, Nicole is ready toRead More
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At the PKD Foundation, we’re proud to offer support through the PKD Connect Peer Mentor Program. This program is designedRead More
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In late September of this year, we welcomed our new Director of Research, Elise Hoover, to the PKD Foundation staff.Read More
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Our recent transplantation webinar with Melissa Blevins Bein, Executive Director of Transplant Programs at UC Davis Medical Center, was a hit! RegistrationRead More
