Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Check out highlights from our new PKD Connect Resource Center
My name is Zseraldina Ferenczi and I am the Community Outreach Coordinator at the PKD Foundation. I am excited to tell you about an important new resource for anyone impacted by polycystic kidney...
2018 PKD Connect Conference: Favorite moments
Whether you were at the 2018 PKD Connect Conference or if we missed you this year, you'll want to catch up on what attendees had to say about the event! Check out the video below, and hopefully...
Summer tips: Why it’s important for PKD patients to stay hydrated
Our cookbook, Cooking Well, doesn’t just have delicious, kidney-friendly recipes—it also has best practices from kidney experts! Check out advice from Dr. Osama Amro from Swedish Medical Center...
Accepting help
I’m a very active participant in my healthcare. I am passionate about being the best advocate for myself and others. However, there is always room for improvement and I have one area that has...
PKD Advancements with Dr. Rahbari-Oskoui, MD, MS, FASN
Please join the PKD Atlanta Chapter as we welcome Dr. Rahbari-Oskoui, MD, MS, FASN to discuss JYNARQUE™ (Tolvaptan), clinical trials and new discoveries in PKD. *The U.S. Food and Drug...
Aneurysms: The silent destroyers, part 2
Following my mother’s episode and subsequent diagnosis as a “vegetable,” life was continuing in the Herman household. We kids were no longer kids. I was 13 and wanting my own life, like any...
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Our own Nicole Harr, Director of Community Engagement, has spent the last two years sharing pieces of her journey asRead More -
Sometimes the littlest thing at an unexpected time can trigger emotions that have been building up for a while. ForRead More -
As many PKD patients know, PKD can often be accompanied by other ailments. Join guest blogger Rob Herman as heRead More -
My name is Zseraldina Ferenczi and I am the Community Outreach Coordinator at the PKD Foundation. I am excited toRead More -
Whether you were at the 2018 PKD Connect Conference or if we missed you this year, you’ll want to catchRead More -
Our cookbook, Cooking Well, doesn’t just have delicious, kidney-friendly recipes—it also has best practices from kidney experts! Check out adviceRead More
