Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Aneurysms: The silent destroyers, part 1
My name is Robert Patrick Herman, proudly named after my mom and dad. I was brought into the world on Friday, August 13, literally in the middle of the Los Angeles riots of 1965. My mom always...
Mother Daughter Q&A
Last week, my mom, Pam, faced her fear and flew alone for the first time, from Pennsylvania to California, to be with me for Mother’s Day. In celebration of her turning 62 this month and Mother’s...
Tips for PKD patients on how to manage hypertension
Our Director of Community Engagement and PKD patient, Nicole Harr, weighs in with her experience with hypertension and best practices for managing blood pressure: “Blood pressure is a measurement...
The new nutrition facts label
The U.S. Food and Drug Administration (FDA) has updated the requirements for the Nutrition Facts label. These changes are based on new data about what constitutes a healthy diet—something all PKD...
How motherhood inspired PKD patient to get involved with tolvaptan clinical trials
This Mother’s Day, we’re celebrating moms and major milestones. We reached out to Jullie Hoggan, who took part in the clinical trials that led to the approval of tolvaptan, to learn more about...
A historic day of hope
“You received your treatment for PKD when you received my kidney. Instead of moving on and focusing on your life, you have dedicated it to helping other PKD patients.” This beautiful sentiment...
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I’ve met individuals who are stubborn when it comes to seeing a doctor. As someone who has been seeing doctorsRead More -
In honor of today being Best Friends Day, we reached out to our friends Liz Casperite and Maria Weaver toRead More -
Walk with us at the Atlanta Walk for PKD in Downtown Duluth on Saturday, Oct. 20, and be a partRead More -
My name is Robert Patrick Herman, proudly named after my mom and dad. I was brought into the world onRead More -
Last week, my mom, Pam, faced her fear and flew alone for the first time, from Pennsylvania to California, toRead More -
Our Director of Community Engagement and PKD patient, Nicole Harr, weighs in with her experience with hypertension and best practicesRead More
