Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Do you know what’s in your food?
When it comes to managing your diet, it’s important to be aware of what goes into the foods you eat. For PKD patients in particular, eating real, wholesome foods is always better than indulging...
Polycystic liver disease patient shares experience with her disease
Polycystic liver disease (PLD) often goes hand in hand with PKD. We recently reached out to PKD community member and advocate Jenn Tompkins to share her experience as a PLD patient, how she has...
Tips to empower yourself as a great patient advocate
Being a patient takes work and dedication. Depending on our health status, it can feel like a part-time to full-time job. It is a constant learning process and important to find a balance between...
PKD Foundation appoints past Fellowship recipient Michal Mrug, M.D., new Scientific Advisory Panel Chair
Meet Michal Mrug, M.D., Chair of the PKD Foundation Scientific Advisory Panel (SAP). The Scientific Advisory Panel is comprised of 14 of the most prestigious physicians and scientists in the...
Navigating emotions
When we endure health issues, we deal not only with our emotions, but also those of others. My immediate circle of support, who are most impacted by my health, are my husband, Noah, and my...
AR or AD? Young patient takes genetic testing to find her PKD type
At the PKD Foundation, we strive to give all types of patient experiences a voice in the community. Recently, an almost un-heard of story came to us from our Orlando Chapter Education Coordinator...
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Summer is coming up faster than you know, and along with it, the 2018 PKD Connect Conference! Formerly known asRead More -
These few ingredients will pack a punch of flavor! Shrimp is always a delicious dish, but spicing it up withRead More -
“It is going to be intense.” This is how my doctor described going through the liver transplant evaluation process. IRead More -
When it comes to managing your diet, it’s important to be aware of what goes into the foods you eat.Read More -
Polycystic liver disease (PLD) often goes hand in hand with PKD. We recently reached out to PKD community member andRead More
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Being a patient takes work and dedication. Depending on our health status, it can feel like a part-time to full-timeRead More
