Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
An Open Letter to PKD
Dear PKD, It’s hard to believe it has been 23 years since we met. You arrived in a fierce and unforgettable manner. I went from having no clue who you were to having an alarming blood pressure...
Emotional Balance
PKD makes us endure so much physically that it can take a toll on us emotionally. Our emotions can keep us stagnant, propel us forward or hold us back. Sometimes we don’t have full control over...
To My Caregiver
Being a patient is no easy feat, and I believe the same applies to the person caring for a patient. I’ve been dealing with health issues since I was a little girl, so being a patient is second...
Adapting to Change
Life has taught me how adaptable we are to change and how fun change can be. Today marks six years since Noah and I arrived in Auburn, Calif. following our month-long cross-country move from...
To My Younger Self
I’ve learned a lot from living with PKD since the age of 10. PKD and the health issues I’ve endured have taught me all facets of strength, emotionally and physically. I believe what we go through...
Build Your Community
I think people would be surprised if they knew how many PKD patients live close to them. I spent a little over a decade after being diagnosed at age ten without ever knowing or crossing paths...
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Disclaimer: This post contains an instance of graphic detail regarding the effects of internal bleeding. Noah and I have livedRead More -
Some things are too grand for the mind to comprehend. For example, I am having trouble processing that my 14-yearRead More
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When hearing the words polycystic kidney disease, it is easy to think that we endure a disease that only affectsRead More
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Dear PKD, It’s hard to believe it has been 23 years since we met. You arrived in a fierce andRead More
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PKD makes us endure so much physically that it can take a toll on us emotionally. Our emotions can keepRead More
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Being a patient is no easy feat, and I believe the same applies to the person caring for a patient.Read More
