Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Phosphorus and PKD: What You Need to Know
Published October 27, 2020 | Before your PKD diagnosis, you probably didn’t give much thought to phosphorus and kidney disease. While it plays many important roles in keeping you...
Introducing the Advocacy Champions Network
Published October 20, 2020 | More than six months after state-level lockdowns began due to the COVID-19 pandemic, it feels as though advocacy organizations everywhere have adapted to the new,...
Researcher Spotlight: Karel Liem Jr., M.D., Ph.D.
Published October 6, 2020 Karel Liem Jr., M.D., Ph.D., Yale University How did you first get involved in PKD research? Karel: My interest in PKD research developed from my genetic studies...
Sneak Peek: The 10-Day Walk for PKD
In two weeks, members of the PKD community will unite for a 10-day virtual Walk for PKD. Months of planning, fundraising, and organizing will culminate in the nation's largest public awareness...
How to be a Long-Distance PKD Caregiver
Published September 22, 2020 | When your loved one has PKD but lives hundreds of miles away or more, staying involved as a PKD caregiver can be trying. Mary Perry, of Antioch, Illinois, learned...
My PKD Journey: Receiving a Kidney Transplant
Published September 15, 2020 | With an ADPKD diagnosis, there's more than a 50% chance a patient will develop kidney failure by age 50. Dialysis or a kidney transplant is the only...
-
Published October 20, 2020 | More than six months after state-level lockdowns began due to the COVID-19 pandemic, it feelsRead More
-
Sometimes, heroes walk among us and aren’t easily recognized. My hero took great care of her kidneys until I wasRead More
-
Dean was a passionate advocate for PKD, a dedicated volunteer & a great friend. His legacy will live on throughRead More
-
I never asked; she volunteered. One test; one match. And just like that, May 21, 2019 Sara Kelly selflessly andRead More
-
Published October 6, 2020 Karel Liem Jr., M.D., Ph.D., Yale University How did you first get involved in PKDRead More