by Sydney Johnston | Jun 9, 2020 | Q and A, Research
Published June 9, 2020 Laurel Willig, M.D., Children’s Mercy How did you first get involved in PKD research? Laurel: I have had a strong interest in the genetics of pediatric renal disease since fellowship. When I started clinical practice, seeing PKD patients...
by Sydney Johnston | Jun 2, 2020 | Advocacy, Caregivers, Education
Published June 2, 2020 When a loved one is diagnosed with PKD, it’s important to learn how to be a PKD advocate. Glenna Frey knows exactly what that’s like. Living in Whitehouse, Ohio, Glenna and her husband, Bob, often drive two hours from their home to...
by Sydney Johnston | May 26, 2020 | Education, Q and A, Research
Published May 26, 2020 Owen Woodward, Ph.D., University of Maryland How did you first get involved in PKD research? Owen: As with most things in life, it was a combination of chance and great role models. I was a Fellow with Bill Guggino at the Johns Hopkins...
by Sydney Johnston | May 21, 2020 | Education, Q and A, Research
Published May 21, 2020 Alessandra Boletta, Ph.D. | San Raffaele Scientific Institute How did you first get involved in PKD research? Alessandra: I started my activity as a postdoctoral Fellow in the lab of Greg Germino at the Johns Hopkins University in...
by Sydney Johnston | May 19, 2020 | Awareness, PKD Foundation News
Published May 14, 2020 The last few months were challenging for all of us in the PKD community. Many feel a deep uncertainty. And while the best advice for most of us is to stay home and sit this out, we all know PKD doesn’t stop, take a break, or slow down. Neither...