Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
How You Can Join the Advocacy Champions Network
Published on September 14, 2023 | Aside from funding research, one of the best ways to drive change in the PKD community is through advocacy. One way you can take part in PKD advocacy is by...
Using Your Voice to Spread PKD Awareness
Published on September 5, 2023 | Today, we celebrate PKD Awareness Day. While polycystic kidney disease (PKD) affects millions of lives worldwide, yet its awareness often remains overshadowed by...
5 Powerful Updates to the ADPKD Registry
Published on August 3, 2023 | In 2019, the PKD Foundation launched the ADPKD Registry, the first national patient-centered registry for people with autosomal dominant polycystic kidney disease....
Why Did the FALCON Clinical Trial End?
Published on May 23, 2023 | On May 10, the ongoing FALCON clinical trial was terminated early. FALCON is a Phase 3 clinical study evaluating the effectiveness and safety of bardoxolone methyl (an...
3 Questions About Virtual Advocacy Day 2023
Published on May 11, 2023 | Last month, PKD advocates from coast to coast participated in Virtual Advocacy Day 2023. Through virtual meetings, patients, friends, researchers, and PKD Foundation...
Advocating on Virtual Advocacy Day with Tamara Walker
Published on March 30, 2023 | In order to change the future of PKD, it takes more than research. Advocacy plays an important part, too. Our Advocacy Champions Network connects PKD advocates to...
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Published on September 14, 2023 | Aside from funding research, one of the best ways to drive change in theRead More -
Published on September 5, 2023 | Today, we celebrate PKD Awareness Day. While polycystic kidney disease (PKD) affects millions ofRead More -
Published on August 3, 2023 | In 2019, the PKD Foundation launched the ADPKD Registry, the first national patient-centered registryRead More -
Published on May 23, 2023 | On May 10, the ongoing FALCON clinical trial was terminated early. FALCON is aRead More -
Published on May 11, 2023 | Last month, PKD advocates from coast to coast participated in Virtual Advocacy Day 2023.Read More -
Published on March 30, 2023 | In order to change the future of PKD, it takes more than research. AdvocacyRead More
