Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
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The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
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Brand new: agenda released for the 2019 PKD in Children Conference
We're only a couple months out from the 2019 PKD in Children Conference, and if you're a PKD parent, this is a can't-miss event! Join us in Chicago from May 3 to 5 for an amazing opportunity to...
PKDF Director of Government Affairs recaps an eventful Rare Disease Week
This past week, 450 rare disease advocates and patients descended on Washington, D.C., for Rare Disease Week, and I was glad to be amongst them. It was a packed agenda with four days of...
Fundraise Your Way: Connecticut father turns homebrew passion into thousands in honor of infant son’s memory
Our Fundraise Your Way program is one of the best ways you can help create a future without PKD. When you turn your hobbies or passions into creative fundraisers, 100% of the money you raise goes...
Transplant recipient celebrating “the sweetest gift of all” this National Donor Day
We're spreading double the love today for National Donor Day! In the US alone, more than 120,000 people are waiting for a life-saving organ donation. We recently reached out to New England...
Lifestyle tips from the PKD community
Here at the PKD Foundation, we love seeing how engaged the greater community is when we reach out for your stories. In the past couple of weeks, we've been asking on social media for your best...
Local volunteer leaders give an inside look at the New York City Chapter
Our nationwide Chapters are a wonderful way to connect with your local PKD community! New York City Chapter Co-Coordinators Sarah Giller and Meg Munits know this best, and were excited to share...
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Earlier this week, I joined over 200 people from pharma, biotech, patient advocacy, regulatory agencies and patients at Patients asRead More
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To know me is to know my family and PKD: how PKD defines my family, but does not hold usRead More
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My name is Paige Trischler, but I also go by Elisabeth Rae. I am 16 and from Pittsburgh, Penn. IRead More
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We’re only a couple months out from the 2019 PKD in Children Conference, and if you’re a PKD parent, thisRead More
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This past week, 450 rare disease advocates and patients descended on Washington, D.C., for Rare Disease Week, and I wasRead More
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Our Fundraise Your Way program is one of the best ways you can help create a future without PKD. When you turnRead More