Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Finding Your Vortex
As my mom and I stood separately on each side of the Airport Vortex in Sedona, Arizona, the view was powerful yet calming. A vortex is a site where spiritual energy is concentrated – a globally...
Health and Information Overload
For some of us, PKD is not our only health issue. In addition to living with PKD and being a kidney transplant recipient, I have epilepsy and serious back issues. I did not have any health...
Facing Fatigue
I’m a go-getter. I like to soak in and accomplish as much as I can each day. My body does not always allow me to do what my mind wants or thinks it can do. When living with chronic health issues...
PKD Messenger
On PKD Awareness Day, Sept. 4, 2015, my family and I used window markers and excitedly decorated our car in a parking lot in Arizona. Our messages ranged from “PKD Awareness Day, PKD Patient...
Why I Walk
I fondly remember being in my early 20s and sitting on my living room floor calling one person after another from a contact list the PKD Foundation gave me. I was calling PKD families in south...
#PKDAwarenessDay
For many of us, we have to deal with PKD personally and also handle the emotions our loved ones endure because of the disease. My mom, at 59 years old, is the oldest to survive in our immediate...
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Trick-or-treating is in full effect! Our homes, offices and bellies are likely full of candy, and it is only theRead More -
I believe setting and achieving goals is important for all of us, especially while enduring health issues. Instead of havingRead More
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There are things we can try to plan for in life, both as regular folks and as PKD patients. TheseRead More
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As my mom and I stood separately on each side of the Airport Vortex in Sedona, Arizona, the view was powerfulRead More
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For some of us, PKD is not our only health issue. In addition to living with PKD and being aRead More
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I’m a go-getter. I like to soak in and accomplish as much as I can each day. My body doesRead More
