Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
National Donor Day: My Kidney Donation Story Pt. 1
Published on February 11, 2021 | Observed every February 14th, National Donor Day is dedicated to spreading awareness and education about organ, eye, and tissue donation. In honor of National...
PKD-Friendly Desserts: Key Lime Pie Recipe
Published on February 2, 2021 | With Valentine's Day just around the corner, lots of us will be craving sweet treats. Nutrition is always top-of-mind when it comes to living with PKD—so what are...
ADPKD Registry: Patient-Powered Research Tool
Published on January 26, 2021 | Staff at the PKD Foundation know that without patient stories, we couldn't understand what it’s like to live with PKD. We're always leaning on patient...
How Do I Fundraise for PKD?
Published on January 19, 2021 | Want to raise funds that benefit the PKD community but not sure where to start? Through the Fundraise Your Way program, it's easy to fundraise for PKDF. Senior...
Researcher Spotlight: Sorin Fedeles, M.S., Ph.D.
Published January 12, 2021 Sorin Fedeles, M.S., Ph.D., Yale University How did you first get involved in PKD research? Sorin: When I first came to Yale, my main goal was to undertake biomedical...
Biomedical Research and Surveillance Research: What’s the Difference?
Published on January 5, 2020 | Research is a term often thrown around to describe everything from complex, controlled experiments to some light Google searching to find your favorite celebrity’s...
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Published on February 11, 2021 | Observed every February 14th, National Donor Day is dedicated to spreading awareness and educationRead More
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Published on February 2, 2021 | With Valentine’s Day just around the corner, lots of us will be craving sweetRead More
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Published on January 26, 2021 | Staff at the PKD Foundation know that without patient stories, we couldn’t understand whatRead More
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Published on January 19, 2021 | Want to raise funds that benefit the PKD community but not sure where toRead More
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Published January 12, 2021 Sorin Fedeles, M.S., Ph.D., Yale University How did you first get involved in PKD research? Sorin:Read More
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Published on January 5, 2020 | Research is a term often thrown around to describe everything from complex, controlled experimentsRead More