Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Catching up with Paige
We sat down with Paige Trischler to learn what’s new in her world and how she navigates living with PKD as a teenager. PKD Foundation (PKDF) Hi Paige! What’s new since the last time you shared...
Funding the federal budget: What you need to know
As lawmakers get ready to return from the August recess, PKD Foundation sat down with Alexis Denny, Director of Government Affairs, to learn more about the intricacies of the general Federal...
Researcher Spotlight: Whitney Besse, M.D.
Researcher: Whitney Besse, M.D. | Yale University PKD Foundation (PKDF): How did you first get involved in PKD research? Whitney: During my clinical Nephrology fellowship, I chose to work with...
PKD Walk: Meet Sue Truhlar
Walk for PKD — Twin Cities The first fall Walk for PKD event is just around the corner. Throughout the country, participants are breaking in their walking shoes and beginning this year’s...
August Recess: Make your Voice Heard
As the only organization in the U.S. solely dedicated to finding new treatments and a cure for PKD, we understand how important it is to increase awareness of the disease and showcase its impact...
ADPKD Registry: Making enrollment a Foundation priority
The PKD Foundation prides itself on being an accessible resource for PKD patients, families and caregivers. But we also understand the need to provide practical ways for PKD patients to play a...
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Today is an exciting day! Because today — in addition to being PKD Awareness Day — marks the launchRead More -
Written by guest contributor Matthew Hallisey Published August 27, 2019 “Get busy living, or get busy dying.” — Ellis BoyRead More -
Researcher: Katharina Hopp, Ph.D. | University of Colorado Denver | Anschutz Medical Campus Assistant Professor, Division of Renal Diseases andRead More -
We sat down with Paige Trischler to learn what’s new in her world and how she navigates living with PKDRead More
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As lawmakers get ready to return from the August recess, PKD Foundation sat down with Alexis Denny, Director of GovernmentRead More
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Researcher: Whitney Besse, M.D. | Yale University PKD Foundation (PKDF): How did you first get involved in PKD research? Whitney:Read More
